12月30日，蔡磊發(fā)布了一段失聲前錄制的視頻引發(fā)關(guān)注。

Cai Lei, former vice-president of JD.com and an amyotrophic lateral sclerosis (ALS) patient, revealed in a pre-recorded video released on Tuesday that his condition has progressed to a near-terminal stage, even as he vowed to continue working to push forward treatment breakthroughs.

確診漸凍癥已超過(guò)6年，疾病逐步剝奪了他的行動(dòng)和語(yǔ)言能力，只能依靠眼控儀與外界交流。

2024年8月，“失聲”前的蔡磊錄下一段特殊的視頻。在錄制時(shí)，所有人都希望不要有播放的一天，因?yàn)檫@意味著他已經(jīng)無(wú)法說(shuō)話(huà)。

Diagnosed with ALS more than six years ago, Cai has gradually lost the ability to move and speak and now relies on an eye-tracking device to communicate. The video was recorded in August 2024, before he lost his voice, and was originally intended to remain unpublished unless his condition deteriorated.

談到自己，蔡磊表示，這是去年拍攝但本希望塵封的視頻，那時(shí)候還可以說(shuō)話(huà)，面部，嘴巴，下巴、牙床還沒(méi)有萎縮塌陷變形……

但在提到患者時(shí)，蔡磊表示，幾位患者的激動(dòng)欣喜視頻卻令人振奮！“現(xiàn)在，部分類(lèi)型的漸凍癥新病人可以站起來(lái)了，可以活下來(lái)了！后天元旦，新年信，我再分享更加振奮的視頻！”

In the video, Cai said that while his own health continues to worsen, recent medical advances are bringing genuine hope to other patients.

視頻公布了多個(gè)漸凍癥患者的治療案例，還有蔡磊在2025年底寫(xiě)下的話(huà)。

蔡磊表示，自己的病情已經(jīng)接近終末期，日夜經(jīng)受著常人無(wú)法想象的疼痛和折磨，但會(huì)通過(guò)眼控儀繼續(xù)滿(mǎn)負(fù)荷工作。

“歷史已經(jīng)被部分改寫(xiě)，單基因漸凍癥已經(jīng)重大突破，可以說(shuō)攻克了。病人不用再死去，早期用藥甚至可以回歸健康生活，其余散發(fā)類(lèi)型的希望也越來(lái)越大�！�

"History has already been partially rewritten," he said, noting that some single-gene ALS patients may now survive and even return to normal life with early treatment, while prospects are also improving for other ALS forms.

He added that he will continue working intensively with the help of assistive technology and promised to share more encouraging developments in the coming year.

視頻發(fā)布后，話(huà)題“蔡磊病情接近終末期”沖上多個(gè)熱搜榜第一位。

在評(píng)論區(qū)，不少人在為他加油打氣。

Following the video's release, the topic "Cai Lei's condition approaching terminal stage" quickly topped Chinese social media trending lists, with many users expressing support and admiration for his determination and resilience.

一起期待

解凍的那一天！

來(lái)源：中 國(guó)青年報(bào) @梨視頻 @蔡磊

跟著China Daily

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